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Autism Safety: Understanding and Preventing Wandering in Your Loved One with Autism

May 19, 2024

For parents of children with autism, safety is not just a priority—it’s a constant concern that permeates every aspect of daily life. One of the most alarming safety risks faced by individuals on the autism spectrum is wandering, or the tendency to leave a safe environment without supervision. Data from the National Autism Association reveals that nearly half of all children with autism engage in wandering behavior, with the prevalence being four times higher than that of their neurotypical peers. This staggering statistic paints a vivid picture of the magnitude of the issue and underscores the urgent need for proactive measures to prevent wandering incidents.



Wandering poses significant dangers to individuals with autism, ranging from exposure to traffic hazards and bodies of water to the risk of becoming lost or encountering strangers with malicious intent. According to a study published in The Journal of Pediatrics, children with autism who wander are at increased risk of injuries and fatalities compared to those who do not engage in wandering. Tragically, elopement-related incidents have resulted in numerous fatalities over the years, highlighting the potentially life-threatening consequences of unaddressed wandering behavior.


As a parent or caregiver of a child with autism, the implications of wandering extend far beyond the immediate safety concerns, affecting your ability to provide your child with the freedom and independence they deserve while ensuring their well-being. 


In this article, we’ll provide a comprehensive overview of the complex issue of autism safety. From teaching effective safety skills and navigating community settings, to practical tips for enhancing home safety, we’ll provide you with knowledge to safeguard your child and empower them to thrive in a world that may not always understand their unique needs.


Identifying and Managing Triggers that Can Lead to Wandering


Identifying and managing triggers for wandering is key to preventing elopement incidents. Common triggers may include sensory overload, such as loud noises or bright lights, unmet physical or emotional needs, such as hunger or boredom, and environmental factors like unfamiliar surroundings or changes in routine.


Detecting what sets off wandering in individuals with autism is like solving a puzzle— you have to really get to know their quirks. Maybe it’s certain sounds or textures that overwhelm them, or maybe they’re just looking for some excitement because they’re bored. By paying close attention and keeping track of when and where they tend to wander, we can start to piece together the triggers. It’s a team effort, involving caregivers, therapists, and anyone who knows the individual well. Once we understand these triggers, we can come up with strategies to help redirect their attention or meet their needs in a safer way. 



Teaching safety skills is one such strategy. Visual supports, like social stories and visual schedules, are like roadmaps to move through the world safely. Imagine creating a social story together with your loved one, using pictures and simple language to illustrate staying in safe areas and what to do if they get lost. Role-playing adds a fun twist to learning, where you can act out scenarios like a trip to the store and practice sticking together, similar to rehearsing for a play where everyone knows their part in staying safe. 


Since public spaces and social interactions can pose specific challenges, be sure to establish specific rules and boundaries in public places. This is especially important for individuals who are nonverbal or minimally verbal and require specialized support to ensure their safety and well-being.  Educating them about body language and personal space can help them to approach social situations with confidence and awareness. 


Positive reinforcement is another powerful tool, think of it like earning gold stars for good behavior. Maybe your loved one gets a special treat for remembering to stay close when you’re out for a walk. 


Lastly, assistive technology can be a lifesaver, quite literally. In addition to offering critical support during emergency situations, it can serve as a digital guardian in everyday situations, and lets your loved one explore while giving you peace of mind. 


Weaving these approaches into your daily routine and m


Making safety a natural part of life empowers your loved one to make their way in the world confidently while staying safe. Ultimately, it’s about creating an environment where they feel supported and understood. 


Creating an Autism-Friendly Home to Enhance Safety


When it comes to enhancing safety at home, visual and physical cues can be highly effective. Visual schedules, for instance, are visual aids that outline a sequence of activities or tasks using pictures, symbols, or words. These schedules can help children with autism understand what is expected of them throughout the day, reducing anxiety and promoting a sense of predictability. Tactile markers, on the other hand, involve using physical objects or textures to signify boundaries or points of interest within the home environment. For example, placing textured stickers on hazardous objects or areas can help children with autism recognize potential dangers more easily.


Establishing routines and maintaining predictable environments are hallmarks of an autism friendly home. Children with autism often thrive on routines and may feel more secure when they know what to expect. Through consistent daily routines and keeping the home environment organized and clutter-free, you can provide structure and stability for your child to avoid accidents or incidents.



By combining these strategies—utilizing technology, implementing physical safeguards, and educating caregivers—it is possible to significantly reduce the risk of wandering and elopement in children with autism, promoting their safety and well-being.


Families facing the challenges of autism safety in the United States are not alone; there is strength in numbers. Accessing resources and support networks is invaluable for these families. National resources such as the Autism Society of America, Autism Speaks, and the National Autism Association offer a wealth of information, training programs, and community-based services tailored to the needs of individuals with autism and their families. Additionally, local organizations like state-specific autism societies or regional autism centers provide specialized assistance and support. Continuing education initiatives from these organizations, along with advocacy efforts at both the national and local levels, can guide families to advocate for improved safety standards and access to supportive resources in their communities.


Final Thoughts on Autism Safety


Ensuring the safety of individuals with autism requires a multifaceted approach that addresses their unique needs and challenges. By implementing strategies for enhancing home safety,  teaching safety skills, navigating community settings, preparing for emergency situations, and leveraging resources and support, caregivers like you can create a safe and supportive environment where your loved one with autism can thrive. It’s essential to remain vigilant, adaptable, and proactive in promoting their safety and well-being, recognizing that ongoing education and advocacy are key to building a more inclusive and supportive society.


 


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